Tag Archives: ostomy

Find support with these upcoming IBD events

No automatic alt text available.Finding support with folks going through the same things as you can sometimes be what gets you through a tough day. Here we have a list of upcoming events for those fighters out there dealing with different forms of IBD, from Crohn’s to Ulcerative Colitis.

Today! Ostomy Awareness Day

The Crohn’s and Colitis Foundation is hosting a live chat via Facebook to discuss life with an ostomy and how other fighters are learning to thrive. Tune in to ask questions, or just have a listen to fellow ostomy-havers. Stephanie from The Stolen Colon will be there to host.

Online Support Group for Patients and Caregivers

The Crohn’s and Colitis Foundation of America is now offering online support groups for patients with various forms of IBD, and also with those who are caregivers. A four-week series of online chats, you can connect with other IBD-ers every Monday evening. While you’re on the site, look around at the Community Forum and the FAQ page, for topics on everything from diet and nutrition to exercise and travel.

Rock the Night to Cure Crohn’s and Colitis

Perhaps the fanciest of the upcoming events, this fundraiser is taking over the Big Apple in search of funds to move research further. Drinks, music, and a silent auction are just a few of the features this event will serve up. Items up for auction include suite tickets to Yankees games or the opera, yoga classes, jewelry, and even a guitar signed by Maroon 5.

Online Ostomy Poll

The Michigan Chapter of the Crohn’s and Colitis Foundation is looking for folks with Crohn’s Disease and Ulcerative Colitis to grow their network and help fighters get more and better resources. Take their one-question poll to start learning more.

More info:

“About 23 to 45 percent of people with ulcerative colitis and up to 75 percent of people with Crohn’s disease will eventually require surgery to treat their disease. There are many types of surgery that may be performed, including surgery to create an ostomy. If you are currently living with, or have lived with before, an ostomy, please participate in our poll!”

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The latest in digestive health news

Image result for digestive health graphicSo much is happening in the world of digestive health. Clinical trials and research are revealing new trends and treatments all the time; fundraisers are happening across the country; more people are learning about the risks and working to prevent colon cancer.

Here are a few interesting things happening in the digestive health world this week.

Michigan Fundraiser – Golf Fore Guts Silent Auction

If golfing isn’t your thing, you can still support this Crohn’s & Colitis Foundation initiative through their silent auction. You’ll find all sorts of signed sports memorabilia and even an in-home wine tasting for 12 of your favorite people.

“The 5th Annual Golf Fore Guts silent auction is open! Bidding will close at 5pm on Sunday, August 13th. You do not have to be present to win. Click the link below to see the list of silent auction items like a Miguel Cabrera signed baseball and TaylorMade golf drivers. To register click the Sign In button on the website or text fore17 to 24700. Happy Bidding!”

Dating with Inflammatory Bowel Disease

Sahara Fleetwood-Beresford shares with The Mighty her and many others’ struggle to date with various forms of IBD – something that folks with healthy guts might not even think of. As if dating isn’t difficult enough, having the added pressure of numerous bathroom trips, frequent fatigue, or wearing an ostomy can create some obstacles that make dating seem unworthy.

“It is small things like this that could affect even the early on stages of dating that I like to get off my chest sooner rather than later. That way, it will soon become clear apparent whether there is any compatibility. These may be small things, but they occur regularly and could present a problem in terms of the outlook for the relationship.”

Read the rest of her heartfelt, honest, and eye-opening blog on The Mighty.

Colon Cancer Rates Rising in Younger White Folks

In the United States, the black population has faced historically higher rates of colon cancer than any other ethnic group. However, the recent rates of colon cancer have increased in the white population – especially in those under 50. This presents a problem since most doctors agree that screening for colon cancer and other digestive issues isn’t necessary until the age of 50 for most. Those with a family history of the disease are encouraged to get screened earlier, but if you’re not aware of your history, you’re at a higher risk.

” The number of whites being diagnosed with colorectal cancer and their mortality rates are rising, even as blacks are seeing a decline in both categories,” says Kaiser Health News. “Despite those declines, however, blacks still have higher rates of death from the disease.”

So while the community is rallying to make sure people are taking as many preventive measures as possible, it might be time to look at the age in which we’re doing so.

The best way to protect yourself is to learn your family history, get to the doctor, and to be open to as many preventive methods as possible.

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World Ostomy Day 2015

Ostomies are surrounded by stigma, but hundreds of thousands of Americans have one.

Ostomies are often stigmatized, but they’ve made life better for hundreds of thousands of Americans.

Ostomies are medically created openings to the body to help folks deal with different digestive issues. People with Inflammatory Bowel Disease, Crohn’s Disease, Ulcerative Colitis and some cancers can benefit from an ostomy.

October 2 marks World Ostomy Day for 2015. This is an awareness campaign that’s celebrated every three years to try to reduce the stigma surrounding ostomies. There are a few different types. Colostomy, Ileostomy, Urustomy and Stoma treat bladder and intestinal issues.

The Huffington Post reports that around 750,000 people in the U.S. live with ostomies. Their recent article, “8 Myths About Ostomies Debunked,” takes a look at some of the assumptions people make and how they can be harmful.

The article points out how an ostomy isn’t the end of the world. And in fact, it can be a ticket to freedom for folks struggling with digestive illnesses.

Stephanie, a Crohn’s disease patient who had ostomy surgery in 2012, said: “Having an ostomy has given me back my life and I am able to do all of things that I’ve always wanted to do, but had been held back before by Crohn’s disease.”

For more information, have a look at the United Ostomy Assocations of America. They offer resources like support groups, discussion boards and events for folks with ostomies and their families.

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