Tag Archives: Colitis

Take Steps for Crohn’s, Colitis and IBD: This Saturday in Royal Oak

Around 1.6 million Americans suffer from some type of IBD, including Crohn’s and Ulcerative Colitis. The worst part about these numbers is that there is no cure, just treatment plans that aren’t guaranteed. And of all those plans, every person fighting a form of IBD reacts differently.

So what can we do?

First thing’s first: Take Steps! The Crohn’s & Colitis Foundation of America hosts walks all across the country to raise awareness and funds for all forms of IBD. This Saturday, June 10, 2017, you can participate in our very own walk in Royal Oak.

Join the Center for Digestive Health as we sponsor a Take Steps walk for the cure in Meininger Park. Along with the walk is a festival full of activities and sponsors with additional information. Check in and the festival begin at 9am, the walk itself starts at 10:30am. All age levels are welcome.

What will the walk support?

Groundbreaking research, empowered patients, and wise investments, all with the goal of furthering research and getting closer to a cure.

“Our research is unprecedented and has significant potential to directly transform IBD patients’ well-being. We are incredibly proud of the work our researchers do each and every day,” says the Crohn’s & Colitis Foundation. “Our national and local programs and services are designed to provide patients of all ages and their loved ones with helpful information to better manage their disease while providing a supportive forum to share experiences and concerns, and connect with others.”

The fundraising is as easy as it comes. Register for the walk, and convince a few close friends to give as little as $16 each. You can also organize a team for the event, to up the awareness and the cash flow to the organization. Bring your kids, friends and pets to enjoy the day’s festivities.

For more information, visit the CCFA’s FAQ page regarding the race, learn more about what Crohn’s and Colitis are, and have a look at specifically where the money goes, so you can rest assured that your efforts are in the right place.

We hope to see you there!

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Inspiring stories from survivors of Crohn’s

Living with a bowel disorder is not a task for the weak. Folks who are surviving and thriving are a constant source of inspiration to us. As part of a regular series, we try to highlight those fighters out there to both celebrate their successes and raise awareness around their struggles.

Here are a few of our favorite stories.

18671186_1452587181467460_525827228929541125_n“This is my 15 year old niece, Audrey. She was just diagnosed with Crohn’s a week ago after being at Children’s Hospital in Nashville for 12 days. She had lost 15 pounds in 2 weeks and had to get two blood transfusions. I am her legal guardian for 6 years now and it broke my heart to have her sent home with a feeding tube and a pic in her arm for antibiotics. She is getting better now with all that gone but is on Prednisone, Pantesa and omeprazole, iron and has back pain and fewer flare ups. She is still weak and had a way to go which is very depressing for her. She had to miss summer, band camp and being with her friends. She has changed the way she eats and knows what irritates her stomach. No more fast food, dairy, some bread and fried foods. It has been a rough road. She has a check up in August and they may put her on Humira. I pray it will help her. My heart goes out to everyone who suffers through this daily and is parents who have to see our children go through pain. Prayer is powerful and I believe my Audrey is healing due to prayers.”

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“I have severe Crohn’s disease that I have been battling for 20 years, this is my Crohn’s tattoo”

 

 

 

stephanie-hughes-hospital-e1432075627501“Today is World IBD Day and I am reminded of a lot of parallels from two years ago. In 2015, I was pregnant for the first time and on May 19 I was admitted to the hospital for the first of four admissions before I was induced four weeks early due to an intestinal blockage. I am so thankful that I am not spending another World IBD Day in the hospital, but I am very aware of how quickly things can go downhill for me if I am not careful about the foods I eat. Remember today that IBD is not just a bathroom disease. IBD does not mean one thing, but can lead to so many different complications for different people.”

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“I got the purple ribbon with a dragon. Never stop fighting.”

 

 

 

 

 

 

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The real struggles of three IBDers

On a normal day, car trouble or a busy grocery store are minor inconveniences. When you add Crohn’s or Colitis to your schedule, your normal day can turn into a bad dream in no time.

To raise awareness of this struggle and show how strong these survivors are, we wanted to share three encouraging stories as we look forward to the bright future of IBDers.

 

Amber Lopez Pelton, Crohn’s SurvivorImage may contain: 2 people, people sitting and indoor

I’m still wearing purple to raise awareness for IBD💜💜💜 I thought someone fixed the brake lights a while ago, but some nice man honked his horn& told me they were out still out. Being in a bad flare, I had an extra change of clothes& took the girls with me& changed& cleaned myself the best I could while I got the truck serviced. It was very embarrassing but The Automotive place treated us very well& gave us a good price& understood. They got to see a little bit of a taste of what us IBDrs go thru on a daily basis, behind closed doors. It can cause depression as well. It’s an autoimmune disease!! So please, take us seriously, many have passed from this& it can b hereditary.

Let’s fight for a cure everyone!! 

Oh& it can turn into Cancer without proper treatment. So let’s raise awareness& fight for a cure💜💜💜Stay strong my IBD Warriors!!

 

Nicole Lynn Cochran, Ostomy SporterImage may contain: 2 people, people smiling, text

I am 28 years old and have suffered from severe ulcerative colitis since I was 19. For years I hid my illness and was embarrassed to talk about the painful and debilitating symptoms associated with inflammatory bowel disease.

I had gone through over 30 medications including biologics, high dose steroids and even forms of chemotherapy with no relief. My colon was killing me. Three weeks ago I went under the knife to remove my diseased colon. I have two more surgeries to go to create my jpouch and to reverse my ileostomy.

I wear a bag and I am not embarrassed, and I have no reason to be.

This bag is giving me LIFE and I intend to take full advantage of that.

I have come a long way from the 19 year old girl that was afraid to talk about her illness. I have an ostomy and I am proud of it!

 

Image may contain: one or more people and plantAmber Schieber, Lifetime IBD Warrior

I’ve had Crohns Colitis and IBD since I’m 9 years old, I’m 20 now, my disease is so sever it has moved into my lungs and has caused respiratory diseases. ” Just breathe” is written in my parents handwriting, symbolic to, deep breath, everything is going to be okay, one step at a time.

Everything does get better, don’t give up, fight like a girl.

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Crohn’s and Colitis Awareness 2016

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#IBDVisible 2016

This week, we celebrate Crohn’s and Colitis Awareness with the goal of making IBD more visible and less isolating for folks who live with it.

The tricky thing about Crohn’s, Colitis, and other forms of IBD, is that oftentimes, people who struggle with the digestive disorders seem ok on the outside. However, the symptoms take their toll internally, causing all sorts of fatigue, loss of appetite, cramping, and frequent bowel movements that can make it difficult to carry on with a normal day but aren’t always visible to folks on the outside.

This awareness week is meant to recognize folks who struggle with various forms of IBD, their caregivers and families, the healthcare professionals who provide care, and the researchers dedicated to finding more advanced treatments and eventually a cure.

The Crohn’s and Colitis Foundation of America has several ways you can get involved or simply raise your awareness about IBD. There are chapters across the country that you can connect with through Facebook to keep up with local fundraising events. Have a look at Michigan’s to see what’s going on in your area. Then, you can read the stories of folks who live with a form of IBD, learn about donating or participating in an event, then read about recent research and the advances the medical community has made.

Beyond that, sharing articles, memes, infographics and even your personal story on social media can help raise awareness about IBD and the struggles these heroes face.

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Announcement! New Facebook page for Research Department

Our Research Department now has its own Facebook page!

Our Research Department now has its own Facebook page!

We’re excited to announce the launch of our Research Department’s very own Facebook page!

The goal of our Research Department is to conduct clinical trials for folks struggling with digestive disorders such as Crohn’s Disease and Ulcerative Colitis. For many patients who haven’t had much success with other courses of treatment, these trials can be a great way to explore other options.

Anyone interested in participating will have to qualify. If you do, you’ll have access to more than 75 years of research experience with high-quality care in a professional and comfortable environment.

To stay up-to-date with our latest trials, like our Facebook page, or contact us at (248) 267-8485.

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