Category Archives: Procedures & Treatments

Infusion Center FAQ: Discover new treatments

Did you know that the Center for Digestive Health has an Infusion Center? Do you know what our Infusion Center can do for you? If you answered “no” to one or both of those questions, you’re not alone.  

We asked Janice Walker, RN, BSN, and new manager of our Infusion Center, to answer some FAQs to better explain how the Center works, what it offers, and how you might benefit.

Do I just sit there during my treatment?

“Our infusion center provides comfortable recliners, pillows, light refreshments, magazines and a wide variety of DVDs to go with our portable player. Patients can bring in their own laptop, tablet, book or craft, and some just bring a blanket and enjoy the opportunity to rest.”

What medications do you provide?

“The Infusion Center administers intravenous medications including Remicade, Entyvio, Stelara, Ferrlecit (Iron) and fluids to patients suffering from Crohn’s, Colitis, Iron Deficient Anemia and Dehydration. We also administer B12 injections and TB tests. There’s also an on-site lab that allows patients to use us as a ‘one-stop shop.’”

Who administers the treatment?

“We have a great team of highly experienced nurses with a variety of medical backgrounds. In addition to administering the infusions, they monitor and coordinate the patient’s lab work, TB test, doctor’s visits and keeps their prescription up to date.”

What happens if I don’t react well to the infusion?

“During the patient’s visit the nurse is responsible for starting the IV, calculating and preparing the medication, administering the medication and monitoring the patient throughout the infusion. In the rare event of an adverse reaction, we always have a physician, nurse practitioner or physician’s assistant on hand to provide a rapid assessment and treatment.”

How do the appointments work?

“Patients make their next appointment when they are here for their infusion, anywhere from 6-8 weeks in advance. Due to the complex nature of the medication, we do not offer ‘walk-in’ appointments.”

How can I expect to feel afterward?

“Most of our patients feel great after their infusion. Often times, because it is a cyclical medication, they can tell when they are due and look forward to their appointment. Most of our patients either go back to work or go back to their other responsibilities as they would any day. A small number of our patients report feeling tired for the remainder of the day, but they tell me it’s nothing compared to how they feel when they don’t get their medication.”

What are my options if I can’t make it during your office hours?

“We offer evening hours to help our patients who may be unable to come in during standard business hours. We have opened a second Infusion area at our Unasource office to offer our patients a better selection of appointment times as well as the possibility of receiving their infusion closer to home or work.”

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Find support with these upcoming IBD events

No automatic alt text available.Finding support with folks going through the same things as you can sometimes be what gets you through a tough day. Here we have a list of upcoming events for those fighters out there dealing with different forms of IBD, from Crohn’s to Ulcerative Colitis.

Today! Ostomy Awareness Day

The Crohn’s and Colitis Foundation is hosting a live chat via Facebook to discuss life with an ostomy and how other fighters are learning to thrive. Tune in to ask questions, or just have a listen to fellow ostomy-havers. Stephanie from The Stolen Colon will be there to host.

Online Support Group for Patients and Caregivers

The Crohn’s and Colitis Foundation of America is now offering online support groups for patients with various forms of IBD, and also with those who are caregivers. A four-week series of online chats, you can connect with other IBD-ers every Monday evening. While you’re on the site, look around at the Community Forum and the FAQ page, for topics on everything from diet and nutrition to exercise and travel.

Rock the Night to Cure Crohn’s and Colitis

Perhaps the fanciest of the upcoming events, this fundraiser is taking over the Big Apple in search of funds to move research further. Drinks, music, and a silent auction are just a few of the features this event will serve up. Items up for auction include suite tickets to Yankees games or the opera, yoga classes, jewelry, and even a guitar signed by Maroon 5.

Online Ostomy Poll

The Michigan Chapter of the Crohn’s and Colitis Foundation is looking for folks with Crohn’s Disease and Ulcerative Colitis to grow their network and help fighters get more and better resources. Take their one-question poll to start learning more.

More info:

“About 23 to 45 percent of people with ulcerative colitis and up to 75 percent of people with Crohn’s disease will eventually require surgery to treat their disease. There are many types of surgery that may be performed, including surgery to create an ostomy. If you are currently living with, or have lived with before, an ostomy, please participate in our poll!”

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The latest in digestive health news

Image result for digestive health graphicSo much is happening in the world of digestive health. Clinical trials and research are revealing new trends and treatments all the time; fundraisers are happening across the country; more people are learning about the risks and working to prevent colon cancer.

Here are a few interesting things happening in the digestive health world this week.

Michigan Fundraiser – Golf Fore Guts Silent Auction

If golfing isn’t your thing, you can still support this Crohn’s & Colitis Foundation initiative through their silent auction. You’ll find all sorts of signed sports memorabilia and even an in-home wine tasting for 12 of your favorite people.

“The 5th Annual Golf Fore Guts silent auction is open! Bidding will close at 5pm on Sunday, August 13th. You do not have to be present to win. Click the link below to see the list of silent auction items like a Miguel Cabrera signed baseball and TaylorMade golf drivers. To register click the Sign In button on the website or text fore17 to 24700. Happy Bidding!”

Dating with Inflammatory Bowel Disease

Sahara Fleetwood-Beresford shares with The Mighty her and many others’ struggle to date with various forms of IBD – something that folks with healthy guts might not even think of. As if dating isn’t difficult enough, having the added pressure of numerous bathroom trips, frequent fatigue, or wearing an ostomy can create some obstacles that make dating seem unworthy.

“It is small things like this that could affect even the early on stages of dating that I like to get off my chest sooner rather than later. That way, it will soon become clear apparent whether there is any compatibility. These may be small things, but they occur regularly and could present a problem in terms of the outlook for the relationship.”

Read the rest of her heartfelt, honest, and eye-opening blog on The Mighty.

Colon Cancer Rates Rising in Younger White Folks

In the United States, the black population has faced historically higher rates of colon cancer than any other ethnic group. However, the recent rates of colon cancer have increased in the white population – especially in those under 50. This presents a problem since most doctors agree that screening for colon cancer and other digestive issues isn’t necessary until the age of 50 for most. Those with a family history of the disease are encouraged to get screened earlier, but if you’re not aware of your history, you’re at a higher risk.

” The number of whites being diagnosed with colorectal cancer and their mortality rates are rising, even as blacks are seeing a decline in both categories,” says Kaiser Health News. “Despite those declines, however, blacks still have higher rates of death from the disease.”

So while the community is rallying to make sure people are taking as many preventive measures as possible, it might be time to look at the age in which we’re doing so.

The best way to protect yourself is to learn your family history, get to the doctor, and to be open to as many preventive methods as possible.

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Inspiring stories from survivors of Crohn’s

Living with a bowel disorder is not a task for the weak. Folks who are surviving and thriving are a constant source of inspiration to us. As part of a regular series, we try to highlight those fighters out there to both celebrate their successes and raise awareness around their struggles.

Here are a few of our favorite stories.

18671186_1452587181467460_525827228929541125_n“This is my 15 year old niece, Audrey. She was just diagnosed with Crohn’s a week ago after being at Children’s Hospital in Nashville for 12 days. She had lost 15 pounds in 2 weeks and had to get two blood transfusions. I am her legal guardian for 6 years now and it broke my heart to have her sent home with a feeding tube and a pic in her arm for antibiotics. She is getting better now with all that gone but is on Prednisone, Pantesa and omeprazole, iron and has back pain and fewer flare ups. She is still weak and had a way to go which is very depressing for her. She had to miss summer, band camp and being with her friends. She has changed the way she eats and knows what irritates her stomach. No more fast food, dairy, some bread and fried foods. It has been a rough road. She has a check up in August and they may put her on Humira. I pray it will help her. My heart goes out to everyone who suffers through this daily and is parents who have to see our children go through pain. Prayer is powerful and I believe my Audrey is healing due to prayers.”

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“I have severe Crohn’s disease that I have been battling for 20 years, this is my Crohn’s tattoo”

 

 

 

stephanie-hughes-hospital-e1432075627501“Today is World IBD Day and I am reminded of a lot of parallels from two years ago. In 2015, I was pregnant for the first time and on May 19 I was admitted to the hospital for the first of four admissions before I was induced four weeks early due to an intestinal blockage. I am so thankful that I am not spending another World IBD Day in the hospital, but I am very aware of how quickly things can go downhill for me if I am not careful about the foods I eat. Remember today that IBD is not just a bathroom disease. IBD does not mean one thing, but can lead to so many different complications for different people.”

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“I got the purple ribbon with a dragon. Never stop fighting.”

 

 

 

 

 

 

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Women’s Health Week: Colon cancer isn’t just for men

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From May 14 – 20, the Office on Women’s Health, U.S. Department of Health and Human Services, works to raise awareness around and provide recommendations for women’s health.

The mission of this initiative is to “Provide national leadership and coordination to improve the health of women and girls through policy, education, and model programs.”

Although there are several issues that primarily affect women – cervical, ovarian and breast cancers, mammograms, osteoporosis – women also face risks with digestive issues. Irritable Bowel Syndrome (IBS), Inflammatory Bowel Disease and Colon Cancer are just a few of the health concerns of which Women’s Health Week works to increase awareness.

And while the risk for colon cancer is slightly lower in women than in men, almost 5% of women will face a diagnosis this year alone. However, those risks have been decreasing steadily over the past several decades, due almost exclusively to advanced screening capabilities and treatment options.

But we’re not out of the woods just yet: Colon cancer is still the third leading cause of cancer deaths in women in the United States.

“The old message was that colon cancer was a man’s disease. We have to be careful not to regress in our message to women.” says Sidney J. Winawer, MD, of Memorial Sloan-Kettering Cancer Center in New York City, to MedPage Today.

So what can women do? Two words: Get screened.

Advancements in technology, research and treatment are only good if we actively opt to utilize them. Most medical professionals recommend that women start their regular colonoscopies at age 50. However, if you have a family history of the disease, or other potential factors such as obesity, smoking and certain ethnicities, your doctor may recommend an earlier start.

For more information on women’s health issues, and National Women’s Health Week in general, WomensHealth.gov. There, you’ll find out how you can get involved, and a comprehensive list of topics that affect women’s health, with information and additional resources for each.

Call to book your colonoscopy today. And remember, screening saves!

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Better colonoscopy prep in the works

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Colonoscopy is by far the best way to detect and prevent digestive issues such as colon cancer.

Oh, the colonoscopy. Although it’s the most effective way to detect and thereby prevent colon cancer and other digestive issues, some people are still reluctant to commit to the procedure. Ask just about anyone who’s endured the quick and painless process, and they’ll tell you that the prep is the most difficult part.

Reports the Chicago Tribune: “Data suggest that about 40 percent of the people who should get a colonoscopy don’t, mostly because of the prep,” says Douglas Rex, a distinguished professor of medicine at Indiana University School of Medicine.

A typical colonoscopy involves drinking lots and lots of not-so-tasty liquids followed by lots and lots of trips to the toilet. Nothing is going to change in the toilet department, but the liquids are getting a face lift.

Researchers are experimenting with flavored shakes and bars such as strawberry banana or coconut that have the same effect as the historically dreaded liquid.

“Those drinking the new products were twice as likely as those who used the standard prep solution to be satisfied and four times as likely to recommend it,” says the Tribune.

The products should be available to patients in about two years.

The entire goal of these new prep methods is to get more people to commit to a colonoscopy, as it’s undoubtedly the number one way to detect and prevent cancer, tumors, polyps and other intestinal abnormalities.

“The easier you make it for people, the more you can improve their adherence,” says Susan Czajkowski, chief of the health behaviors research branch of the National Cancer Institute.

“The perfect screen has no value if it isn’t used.”

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Colon cancer rates on the rise in young people

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Listen to your body and be honest with your doctor. Early screening can detect and prevent complications from colon cancer.

As we continue through Colon Cancer Awareness month, our goal is to increase the conversations people have about the disease. Knowing that screenings are by far the most effective way to detect colon cancer early can even work to prevent it altogether.

An unfortunate trend in the fight against colon cancer is a spike in the amount of young people diagnosed. Formerly considered a disease reserved for older men, this new uptick in folks under 40 is disturbing but also mostly unexplained.

“People born in 1990 have twice the risk of colon cancer and four times the risk of rectal cancer as people born in 1950 faced at the same age,” says CBS New York.

For people of an average risk, the standard age to begin screening for colon cancer is 50. The only problem with that guideline is that younger folks are getting missed, often until it’s too late.

While the medical community struggles to pinpoint the cause of the surge, many speculate that changes in lifestyle and diet are to blame.

“Prime suspects include obesity, inactivity and poor diets,” said researchers from the American Cancer Society.

In other words, the behaviors we know are bad for us, and cause health issues across the board, are the likely culprit in the uptick in colon cancer.

While the statistics are alarming, the overall rates of colon cancer in younger people is still low. But that doesn’t mean there’s no lesson in this – be your own health advocate. Listen to your body and work with your doctor to pinpoint when something is wrong.

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The real struggles of three IBDers

On a normal day, car trouble or a busy grocery store are minor inconveniences. When you add Crohn’s or Colitis to your schedule, your normal day can turn into a bad dream in no time.

To raise awareness of this struggle and show how strong these survivors are, we wanted to share three encouraging stories as we look forward to the bright future of IBDers.

 

Amber Lopez Pelton, Crohn’s SurvivorImage may contain: 2 people, people sitting and indoor

I’m still wearing purple to raise awareness for IBD💜💜💜 I thought someone fixed the brake lights a while ago, but some nice man honked his horn& told me they were out still out. Being in a bad flare, I had an extra change of clothes& took the girls with me& changed& cleaned myself the best I could while I got the truck serviced. It was very embarrassing but The Automotive place treated us very well& gave us a good price& understood. They got to see a little bit of a taste of what us IBDrs go thru on a daily basis, behind closed doors. It can cause depression as well. It’s an autoimmune disease!! So please, take us seriously, many have passed from this& it can b hereditary.

Let’s fight for a cure everyone!! 

Oh& it can turn into Cancer without proper treatment. So let’s raise awareness& fight for a cure💜💜💜Stay strong my IBD Warriors!!

 

Nicole Lynn Cochran, Ostomy SporterImage may contain: 2 people, people smiling, text

I am 28 years old and have suffered from severe ulcerative colitis since I was 19. For years I hid my illness and was embarrassed to talk about the painful and debilitating symptoms associated with inflammatory bowel disease.

I had gone through over 30 medications including biologics, high dose steroids and even forms of chemotherapy with no relief. My colon was killing me. Three weeks ago I went under the knife to remove my diseased colon. I have two more surgeries to go to create my jpouch and to reverse my ileostomy.

I wear a bag and I am not embarrassed, and I have no reason to be.

This bag is giving me LIFE and I intend to take full advantage of that.

I have come a long way from the 19 year old girl that was afraid to talk about her illness. I have an ostomy and I am proud of it!

 

Image may contain: one or more people and plantAmber Schieber, Lifetime IBD Warrior

I’ve had Crohns Colitis and IBD since I’m 9 years old, I’m 20 now, my disease is so sever it has moved into my lungs and has caused respiratory diseases. ” Just breathe” is written in my parents handwriting, symbolic to, deep breath, everything is going to be okay, one step at a time.

Everything does get better, don’t give up, fight like a girl.

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Crohn’s and Colitis Awareness 2016

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#IBDVisible 2016

This week, we celebrate Crohn’s and Colitis Awareness with the goal of making IBD more visible and less isolating for folks who live with it.

The tricky thing about Crohn’s, Colitis, and other forms of IBD, is that oftentimes, people who struggle with the digestive disorders seem ok on the outside. However, the symptoms take their toll internally, causing all sorts of fatigue, loss of appetite, cramping, and frequent bowel movements that can make it difficult to carry on with a normal day but aren’t always visible to folks on the outside.

This awareness week is meant to recognize folks who struggle with various forms of IBD, their caregivers and families, the healthcare professionals who provide care, and the researchers dedicated to finding more advanced treatments and eventually a cure.

The Crohn’s and Colitis Foundation of America has several ways you can get involved or simply raise your awareness about IBD. There are chapters across the country that you can connect with through Facebook to keep up with local fundraising events. Have a look at Michigan’s to see what’s going on in your area. Then, you can read the stories of folks who live with a form of IBD, learn about donating or participating in an event, then read about recent research and the advances the medical community has made.

Beyond that, sharing articles, memes, infographics and even your personal story on social media can help raise awareness about IBD and the struggles these heroes face.

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New study reports link between fungus and Crohn’s

Crohn's has a new fungus to examine for a cure.

A new study shows a connection between Crohn’s and a gut fungus, the first time this relationship has been studied.

A small but promising study was released by Case Western Reserve University showing a link between certain types of fungus in the intestines. There’s bacteria in everyone’s guts, but folks with Crohn’s have an abnormal immune response to them. Until now, few studies have looked at the role of the fungi that’s also present in our tummies.

“Equally important,” says Science Daily, “it can result in a new generation of treatments, including medications and probiotics, which hold the potential for making qualitative and quantitative differences in the lives of people suffering from Crohn’s.”

The study looked at four families with members who have Crohn’s and nine families who don’t. The presence of the fungi in question was much higher in family members with Crohn’s than those without. Fungus levels were higher and bacteria levels were lower in those with the disorder. This is the first time this type of connection’s been made.

Although this study is small, it’s important that it looks at different families from different regions. The two main causes of Crohn’s are genetics and environment, and families share those two!

Although “further research is needed to be even more specific in identifying precipitators and contributors of Crohn’s,” this is still great progress that can hopefully lead to additional treatments.

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