Category Archives: Ostomies

The real struggles of three IBDers

On a normal day, car trouble or a busy grocery store are minor inconveniences. When you add Crohn’s or Colitis to your schedule, your normal day can turn into a bad dream in no time.

To raise awareness of this struggle and show how strong these survivors are, we wanted to share three encouraging stories as we look forward to the bright future of IBDers.

 

Amber Lopez Pelton, Crohn’s SurvivorImage may contain: 2 people, people sitting and indoor

I’m still wearing purple to raise awareness for IBD💜💜💜 I thought someone fixed the brake lights a while ago, but some nice man honked his horn& told me they were out still out. Being in a bad flare, I had an extra change of clothes& took the girls with me& changed& cleaned myself the best I could while I got the truck serviced. It was very embarrassing but The Automotive place treated us very well& gave us a good price& understood. They got to see a little bit of a taste of what us IBDrs go thru on a daily basis, behind closed doors. It can cause depression as well. It’s an autoimmune disease!! So please, take us seriously, many have passed from this& it can b hereditary.

Let’s fight for a cure everyone!! 

Oh& it can turn into Cancer without proper treatment. So let’s raise awareness& fight for a cure💜💜💜Stay strong my IBD Warriors!!

 

Nicole Lynn Cochran, Ostomy SporterImage may contain: 2 people, people smiling, text

I am 28 years old and have suffered from severe ulcerative colitis since I was 19. For years I hid my illness and was embarrassed to talk about the painful and debilitating symptoms associated with inflammatory bowel disease.

I had gone through over 30 medications including biologics, high dose steroids and even forms of chemotherapy with no relief. My colon was killing me. Three weeks ago I went under the knife to remove my diseased colon. I have two more surgeries to go to create my jpouch and to reverse my ileostomy.

I wear a bag and I am not embarrassed, and I have no reason to be.

This bag is giving me LIFE and I intend to take full advantage of that.

I have come a long way from the 19 year old girl that was afraid to talk about her illness. I have an ostomy and I am proud of it!

 

Image may contain: one or more people and plantAmber Schieber, Lifetime IBD Warrior

I’ve had Crohns Colitis and IBD since I’m 9 years old, I’m 20 now, my disease is so sever it has moved into my lungs and has caused respiratory diseases. ” Just breathe” is written in my parents handwriting, symbolic to, deep breath, everything is going to be okay, one step at a time.

Everything does get better, don’t give up, fight like a girl.

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World Ostomy Day 2015

Ostomies are surrounded by stigma, but hundreds of thousands of Americans have one.

Ostomies are often stigmatized, but they’ve made life better for hundreds of thousands of Americans.

Ostomies are medically created openings to the body to help folks deal with different digestive issues. People with Inflammatory Bowel Disease, Crohn’s Disease, Ulcerative Colitis and some cancers can benefit from an ostomy.

October 2 marks World Ostomy Day for 2015. This is an awareness campaign that’s celebrated every three years to try to reduce the stigma surrounding ostomies. There are a few different types. Colostomy, Ileostomy, Urustomy and Stoma treat bladder and intestinal issues.

The Huffington Post reports that around 750,000 people in the U.S. live with ostomies. Their recent article, “8 Myths About Ostomies Debunked,” takes a look at some of the assumptions people make and how they can be harmful.

The article points out how an ostomy isn’t the end of the world. And in fact, it can be a ticket to freedom for folks struggling with digestive illnesses.

Stephanie, a Crohn’s disease patient who had ostomy surgery in 2012, said: “Having an ostomy has given me back my life and I am able to do all of things that I’ve always wanted to do, but had been held back before by Crohn’s disease.”

For more information, have a look at the United Ostomy Assocations of America. They offer resources like support groups, discussion boards and events for folks with ostomies and their families.

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