Category Archives: Caregivers

Find support with these upcoming IBD events

No automatic alt text available.Finding support with folks going through the same things as you can sometimes be what gets you through a tough day. Here we have a list of upcoming events for those fighters out there dealing with different forms of IBD, from Crohn’s to Ulcerative Colitis.

Today! Ostomy Awareness Day

The Crohn’s and Colitis Foundation is hosting a live chat via Facebook to discuss life with an ostomy and how other fighters are learning to thrive. Tune in to ask questions, or just have a listen to fellow ostomy-havers. Stephanie from The Stolen Colon will be there to host.

Online Support Group for Patients and Caregivers

The Crohn’s and Colitis Foundation of America is now offering online support groups for patients with various forms of IBD, and also with those who are caregivers. A four-week series of online chats, you can connect with other IBD-ers every Monday evening. While you’re on the site, look around at the Community Forum and the FAQ page, for topics on everything from diet and nutrition to exercise and travel.

Rock the Night to Cure Crohn’s and Colitis

Perhaps the fanciest of the upcoming events, this fundraiser is taking over the Big Apple in search of funds to move research further. Drinks, music, and a silent auction are just a few of the features this event will serve up. Items up for auction include suite tickets to Yankees games or the opera, yoga classes, jewelry, and even a guitar signed by Maroon 5.

Online Ostomy Poll

The Michigan Chapter of the Crohn’s and Colitis Foundation is looking for folks with Crohn’s Disease and Ulcerative Colitis to grow their network and help fighters get more and better resources. Take their one-question poll to start learning more.

More info:

“About 23 to 45 percent of people with ulcerative colitis and up to 75 percent of people with Crohn’s disease will eventually require surgery to treat their disease. There are many types of surgery that may be performed, including surgery to create an ostomy. If you are currently living with, or have lived with before, an ostomy, please participate in our poll!”

Facebooktwittergoogle_plusredditpinterestlinkedinmail

Crohn’s and Colitis Awareness 2016

Image result for crohn's and colitis awareness week

#IBDVisible 2016

This week, we celebrate Crohn’s and Colitis Awareness with the goal of making IBD more visible and less isolating for folks who live with it.

The tricky thing about Crohn’s, Colitis, and other forms of IBD, is that oftentimes, people who struggle with the digestive disorders seem ok on the outside. However, the symptoms take their toll internally, causing all sorts of fatigue, loss of appetite, cramping, and frequent bowel movements that can make it difficult to carry on with a normal day but aren’t always visible to folks on the outside.

This awareness week is meant to recognize folks who struggle with various forms of IBD, their caregivers and families, the healthcare professionals who provide care, and the researchers dedicated to finding more advanced treatments and eventually a cure.

The Crohn’s and Colitis Foundation of America has several ways you can get involved or simply raise your awareness about IBD. There are chapters across the country that you can connect with through Facebook to keep up with local fundraising events. Have a look at Michigan’s to see what’s going on in your area. Then, you can read the stories of folks who live with a form of IBD, learn about donating or participating in an event, then read about recent research and the advances the medical community has made.

Beyond that, sharing articles, memes, infographics and even your personal story on social media can help raise awareness about IBD and the struggles these heroes face.

Facebooktwittergoogle_plusredditpinterestlinkedinmail

RESPITE: November is National Family Caregivers Month

November is national family caregivers month.

The theme for family caregivers month is RESPITE, encouraging caregivers to take care of themselves.

Caregivers fill many different roles in a family. It could be a full-time nurse who stays with an elderly parent or sick child. But a caregiver can also be someone who grocery shops for a neighbor or makes dinner for a sibling twice a week. Caregiving is one of the most difficult jobs that you can take on.

For this year’s National Family Caregivers Month, the theme is “Respite: Care for Caregivers.” Respite is a chance to getaway from a demanding or difficult situation. This campaign is making a push to encourage caregivers to care for themselves and take some time away. As with most jobs, time off is not just invigorating but necessary for your well being.

The Caregiver Action Network has created an acronym for RESPITE: Rest and Relaxation, Energize, Sleep, Programs, Imagination, Take five and Exhale. Their site has provided resources to help with each of the principles,

“Respite protects your own health, strengthens family relationships, prevents burn-out and allows your loves ones to stay at home up to three times longer,” says the campaign.  We couldn’t agree more.

Facebooktwittergoogle_plusredditpinterestlinkedinmail