Category Archives: Cancer Awareness

Take Steps for Crohn’s, Colitis and IBD: This Saturday in Royal Oak

Around 1.6 million Americans suffer from some type of IBD, including Crohn’s and Ulcerative Colitis. The worst part about these numbers is that there is no cure, just treatment plans that aren’t guaranteed. And of all those plans, every person fighting a form of IBD reacts differently.

So what can we do?

First thing’s first: Take Steps! The Crohn’s & Colitis Foundation of America hosts walks all across the country to raise awareness and funds for all forms of IBD. This Saturday, June 10, 2017, you can participate in our very own walk in Royal Oak.

Join the Center for Digestive Health as we sponsor a Take Steps walk for the cure in Meininger Park. Along with the walk is a festival full of activities and sponsors with additional information. Check in and the festival begin at 9am, the walk itself starts at 10:30am. All age levels are welcome.

What will the walk support?

Groundbreaking research, empowered patients, and wise investments, all with the goal of furthering research and getting closer to a cure.

“Our research is unprecedented and has significant potential to directly transform IBD patients’ well-being. We are incredibly proud of the work our researchers do each and every day,” says the Crohn’s & Colitis Foundation. “Our national and local programs and services are designed to provide patients of all ages and their loved ones with helpful information to better manage their disease while providing a supportive forum to share experiences and concerns, and connect with others.”

The fundraising is as easy as it comes. Register for the walk, and convince a few close friends to give as little as $16 each. You can also organize a team for the event, to up the awareness and the cash flow to the organization. Bring your kids, friends and pets to enjoy the day’s festivities.

For more information, visit the CCFA’s FAQ page regarding the race, learn more about what Crohn’s and Colitis are, and have a look at specifically where the money goes, so you can rest assured that your efforts are in the right place.

We hope to see you there!

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Inspiring stories from survivors of Crohn’s

Living with a bowel disorder is not a task for the weak. Folks who are surviving and thriving are a constant source of inspiration to us. As part of a regular series, we try to highlight those fighters out there to both celebrate their successes and raise awareness around their struggles.

Here are a few of our favorite stories.

18671186_1452587181467460_525827228929541125_n“This is my 15 year old niece, Audrey. She was just diagnosed with Crohn’s a week ago after being at Children’s Hospital in Nashville for 12 days. She had lost 15 pounds in 2 weeks and had to get two blood transfusions. I am her legal guardian for 6 years now and it broke my heart to have her sent home with a feeding tube and a pic in her arm for antibiotics. She is getting better now with all that gone but is on Prednisone, Pantesa and omeprazole, iron and has back pain and fewer flare ups. She is still weak and had a way to go which is very depressing for her. She had to miss summer, band camp and being with her friends. She has changed the way she eats and knows what irritates her stomach. No more fast food, dairy, some bread and fried foods. It has been a rough road. She has a check up in August and they may put her on Humira. I pray it will help her. My heart goes out to everyone who suffers through this daily and is parents who have to see our children go through pain. Prayer is powerful and I believe my Audrey is healing due to prayers.”

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“I have severe Crohn’s disease that I have been battling for 20 years, this is my Crohn’s tattoo”

 

 

 

stephanie-hughes-hospital-e1432075627501“Today is World IBD Day and I am reminded of a lot of parallels from two years ago. In 2015, I was pregnant for the first time and on May 19 I was admitted to the hospital for the first of four admissions before I was induced four weeks early due to an intestinal blockage. I am so thankful that I am not spending another World IBD Day in the hospital, but I am very aware of how quickly things can go downhill for me if I am not careful about the foods I eat. Remember today that IBD is not just a bathroom disease. IBD does not mean one thing, but can lead to so many different complications for different people.”

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“I got the purple ribbon with a dragon. Never stop fighting.”

 

 

 

 

 

 

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Women’s Health Week: Colon cancer isn’t just for men

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From May 14 – 20, the Office on Women’s Health, U.S. Department of Health and Human Services, works to raise awareness around and provide recommendations for women’s health.

The mission of this initiative is to “Provide national leadership and coordination to improve the health of women and girls through policy, education, and model programs.”

Although there are several issues that primarily affect women – cervical, ovarian and breast cancers, mammograms, osteoporosis – women also face risks with digestive issues. Irritable Bowel Syndrome (IBS), Inflammatory Bowel Disease and Colon Cancer are just a few of the health concerns of which Women’s Health Week works to increase awareness.

And while the risk for colon cancer is slightly lower in women than in men, almost 5% of women will face a diagnosis this year alone. However, those risks have been decreasing steadily over the past several decades, due almost exclusively to advanced screening capabilities and treatment options.

But we’re not out of the woods just yet: Colon cancer is still the third leading cause of cancer deaths in women in the United States.

“The old message was that colon cancer was a man’s disease. We have to be careful not to regress in our message to women.” says Sidney J. Winawer, MD, of Memorial Sloan-Kettering Cancer Center in New York City, to MedPage Today.

So what can women do? Two words: Get screened.

Advancements in technology, research and treatment are only good if we actively opt to utilize them. Most medical professionals recommend that women start their regular colonoscopies at age 50. However, if you have a family history of the disease, or other potential factors such as obesity, smoking and certain ethnicities, your doctor may recommend an earlier start.

For more information on women’s health issues, and National Women’s Health Week in general, WomensHealth.gov. There, you’ll find out how you can get involved, and a comprehensive list of topics that affect women’s health, with information and additional resources for each.

Call to book your colonoscopy today. And remember, screening saves!

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Better colonoscopy prep in the works

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Colonoscopy is by far the best way to detect and prevent digestive issues such as colon cancer.

Oh, the colonoscopy. Although it’s the most effective way to detect and thereby prevent colon cancer and other digestive issues, some people are still reluctant to commit to the procedure. Ask just about anyone who’s endured the quick and painless process, and they’ll tell you that the prep is the most difficult part.

Reports the Chicago Tribune: “Data suggest that about 40 percent of the people who should get a colonoscopy don’t, mostly because of the prep,” says Douglas Rex, a distinguished professor of medicine at Indiana University School of Medicine.

A typical colonoscopy involves drinking lots and lots of not-so-tasty liquids followed by lots and lots of trips to the toilet. Nothing is going to change in the toilet department, but the liquids are getting a face lift.

Researchers are experimenting with flavored shakes and bars such as strawberry banana or coconut that have the same effect as the historically dreaded liquid.

“Those drinking the new products were twice as likely as those who used the standard prep solution to be satisfied and four times as likely to recommend it,” says the Tribune.

The products should be available to patients in about two years.

The entire goal of these new prep methods is to get more people to commit to a colonoscopy, as it’s undoubtedly the number one way to detect and prevent cancer, tumors, polyps and other intestinal abnormalities.

“The easier you make it for people, the more you can improve their adherence,” says Susan Czajkowski, chief of the health behaviors research branch of the National Cancer Institute.

“The perfect screen has no value if it isn’t used.”

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Colon cancer rates on the rise in young people

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Listen to your body and be honest with your doctor. Early screening can detect and prevent complications from colon cancer.

As we continue through Colon Cancer Awareness month, our goal is to increase the conversations people have about the disease. Knowing that screenings are by far the most effective way to detect colon cancer early can even work to prevent it altogether.

An unfortunate trend in the fight against colon cancer is a spike in the amount of young people diagnosed. Formerly considered a disease reserved for older men, this new uptick in folks under 40 is disturbing but also mostly unexplained.

“People born in 1990 have twice the risk of colon cancer and four times the risk of rectal cancer as people born in 1950 faced at the same age,” says CBS New York.

For people of an average risk, the standard age to begin screening for colon cancer is 50. The only problem with that guideline is that younger folks are getting missed, often until it’s too late.

While the medical community struggles to pinpoint the cause of the surge, many speculate that changes in lifestyle and diet are to blame.

“Prime suspects include obesity, inactivity and poor diets,” said researchers from the American Cancer Society.

In other words, the behaviors we know are bad for us, and cause health issues across the board, are the likely culprit in the uptick in colon cancer.

While the statistics are alarming, the overall rates of colon cancer in younger people is still low. But that doesn’t mean there’s no lesson in this – be your own health advocate. Listen to your body and work with your doctor to pinpoint when something is wrong.

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It’s time to quit smoking for your colon health

Image result for quit smokingWe all know smoking is bad for us. We also know how much it sucks to try to quit. And while you’ve probably heard all of the advice in the world and all of the complications it can cause, now, there’s another reason to quit: Colon cancer recovery.

A new study suggests that folks who smoke aren’t as likely to survive the fight against colon cancer as former smokers or those who never smoked.

And to make matters worse, upon diagnoses, smokers were more likely to be in an emergency situation or need immediate surgery.

“People are generally deniers especially when it comes to pleasurable habits or when a life style change is recommended for their health,” said Dr. Sidney Winawer of Memorial Sloan Kettering Cancer Center in New York.

So what can you do?

The most effective way to quit is to work with your doctor to create a plan or to join a support group. Any time you’re looking to kick a bad habit, having support from a community or partner creates a level of accountability that is difficult to replicate on your own.

“Your doctor can be a key resource as you’re trying to quit smoking. He or she can talk to you about medications to help you quit and put you in contact with local resources,” says The American Lung Association.

The ALA has all sorts of other resources to help you make sense of what to expect and how to be successful at quitting. Check out their I Want To Quit Smoking page for reasons, facts, frequently asked questions and support you can get from the ALA itself.

Smoking is the worst thing you can voluntarily do to your health. Make an appointment with your doctor and commit to making yourself healthier.

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Colon cancer and exercise: The connection to longevity

Image result for older person exerciseEveryone knows that exercise is the one thing that we could all be getting more of. And even though it can be tough, especially in these cold winter months, now there’s even more of a reason to get moving.

A new study reveals that survivors of colon cancer have a better chance of survival if they engage in some exercise.

“Patients who engaged in at least five hours of non-vigorous physical activity a week had a 25% reduction in the hazard for survival,” says MedPage Today. “With four or more hours of weekly activity, the survival hazard improved by 20%.”

And it seems as though the length of exercise was more important than the vigor. Which is good news for folks who have a difficult time with cardio. Hitting five hours a week showed less progression of the disease and increased longevity.

An hour a day might seem a little steep if you’re just starting out. But you don’t have to jump right into the full schedule – you can work your way up. And, you can do 20-30 minutes at a time a couple times a day to help break it up.

Here are a few ideas to get going. Mix them up to keep things interesting.

  • Map out a walking trail around your office grounds or hallways, and take a break mid-morning and mid-afternoon to do a few laps.
  • If you have a dog, bundle up and get the both of you outside. Just make sure the sidewalks are clear.
  • Take the stairs whenever possible. If you work on a really high floor, get off the elevator three to four floors early and walk the rest of the way.
  • Set up one cleaning project a week, and set aside a half hour each night to work on it.
  • Try some simple yoga moves. Follow simple routines for beginners.
  • Find out what classes are offered at your local community center or school. Also look at your local gym or Y for an affordable weekly class.

While five hours is a great goal, if you know you won’t hit it, don’t set yourself up for failure. Aim to increase your activity level by one hour a week until you hit five.

And remember, “These findings suggest that it doesn’t take a lot of physical activity to improve outcomes,” says MedPage Today. “While exercise is by no means a substitute for chemotherapy, patients can experience a wide range of benefits from as little as 3o minutes of exercise a day.”

 

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The real struggles of three IBDers

On a normal day, car trouble or a busy grocery store are minor inconveniences. When you add Crohn’s or Colitis to your schedule, your normal day can turn into a bad dream in no time.

To raise awareness of this struggle and show how strong these survivors are, we wanted to share three encouraging stories as we look forward to the bright future of IBDers.

 

Amber Lopez Pelton, Crohn’s SurvivorImage may contain: 2 people, people sitting and indoor

I’m still wearing purple to raise awareness for IBD💜💜💜 I thought someone fixed the brake lights a while ago, but some nice man honked his horn& told me they were out still out. Being in a bad flare, I had an extra change of clothes& took the girls with me& changed& cleaned myself the best I could while I got the truck serviced. It was very embarrassing but The Automotive place treated us very well& gave us a good price& understood. They got to see a little bit of a taste of what us IBDrs go thru on a daily basis, behind closed doors. It can cause depression as well. It’s an autoimmune disease!! So please, take us seriously, many have passed from this& it can b hereditary.

Let’s fight for a cure everyone!! 

Oh& it can turn into Cancer without proper treatment. So let’s raise awareness& fight for a cure💜💜💜Stay strong my IBD Warriors!!

 

Nicole Lynn Cochran, Ostomy SporterImage may contain: 2 people, people smiling, text

I am 28 years old and have suffered from severe ulcerative colitis since I was 19. For years I hid my illness and was embarrassed to talk about the painful and debilitating symptoms associated with inflammatory bowel disease.

I had gone through over 30 medications including biologics, high dose steroids and even forms of chemotherapy with no relief. My colon was killing me. Three weeks ago I went under the knife to remove my diseased colon. I have two more surgeries to go to create my jpouch and to reverse my ileostomy.

I wear a bag and I am not embarrassed, and I have no reason to be.

This bag is giving me LIFE and I intend to take full advantage of that.

I have come a long way from the 19 year old girl that was afraid to talk about her illness. I have an ostomy and I am proud of it!

 

Image may contain: one or more people and plantAmber Schieber, Lifetime IBD Warrior

I’ve had Crohns Colitis and IBD since I’m 9 years old, I’m 20 now, my disease is so sever it has moved into my lungs and has caused respiratory diseases. ” Just breathe” is written in my parents handwriting, symbolic to, deep breath, everything is going to be okay, one step at a time.

Everything does get better, don’t give up, fight like a girl.

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Crohn’s and Colitis Awareness 2016

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#IBDVisible 2016

This week, we celebrate Crohn’s and Colitis Awareness with the goal of making IBD more visible and less isolating for folks who live with it.

The tricky thing about Crohn’s, Colitis, and other forms of IBD, is that oftentimes, people who struggle with the digestive disorders seem ok on the outside. However, the symptoms take their toll internally, causing all sorts of fatigue, loss of appetite, cramping, and frequent bowel movements that can make it difficult to carry on with a normal day but aren’t always visible to folks on the outside.

This awareness week is meant to recognize folks who struggle with various forms of IBD, their caregivers and families, the healthcare professionals who provide care, and the researchers dedicated to finding more advanced treatments and eventually a cure.

The Crohn’s and Colitis Foundation of America has several ways you can get involved or simply raise your awareness about IBD. There are chapters across the country that you can connect with through Facebook to keep up with local fundraising events. Have a look at Michigan’s to see what’s going on in your area. Then, you can read the stories of folks who live with a form of IBD, learn about donating or participating in an event, then read about recent research and the advances the medical community has made.

Beyond that, sharing articles, memes, infographics and even your personal story on social media can help raise awareness about IBD and the struggles these heroes face.

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September raises awareness for different cancers

Thyroid, prostate, blood, ovarian and childhood cancers are in the spotlight for awareness this month.

September raises awareness for several types of cancer.

The month of September can be a difficult one for many people. As the memory of September 11, 2001 lives on, this month has found a silver lining: Several initiatives to raise awareness for cancer.

As we mentioned last year, September is the month to focus on childhood, thyroid, ovarian, blood and prostate cancers, and what we can do to help.

Since detection, prevention and awareness is the name of our game, we thought we’d give you the run down on each initiative’s plans for this year.

Childhood Cancer

Almost 16,000 people under the age of 21 are diagnosed with cancer each year in the U.S. If you’d like to get involved, you can donate, arrange a corporate event, even have a pajama party in your community.

Find out more about how to help.

Thyroid Cancer

ThyCa tells us that just a simple action can help raise awareness of Thyroid Cancer, even adding an awareness mention in the signature of your email. They only ask one question: Have you had your neck checked?

Learn how you can get involved.

Ovarian Cancer

Approximately 22,000 women a year are diagnosed with ovarian cancer. But, when detected early, the five-year survival rate is staggering (in a good way!). Look for their ads, billboards and information through their YouTube channel

Raise awareness for ovarian cancer.

Blood Cancers

The Leukemia and Lymphoma Society does so much research to advance science for detection, prevention and treatment of blood cancers. Their goal this year is to raise $300,000 for the campaign.

Support blood cancer research.

Prostate Cancer

The second leading cause of cancer death in men is on the chopping block. With 29,000 men diagnosed every year, we can do more to get involved. They offer golf programs, home run challenges, plenty of ideas for fundraisers, and simpler forms of support.

See how you can help prevent prostate cancer.

No matter what cause is near to your heart, remember that prevention and early detection are the absolute best way to fight cancer.

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